Baby, one, given £1.79million drug on the NHS takes first assisted steps

A BABY given the world’s most expensive drug through the NHS takes his first assisted steps. Edward Willis-Hall was treated with £1.79million gene therapy medication Zolgensma for spinal muscular atrophy in August. The condition makes muscles weaker and causes problems with movement and breathing owing to lack of a vital protein. One-year-old Edward can also […]

A BABY given the world’s most expensive drug through the NHS takes his first assisted steps.

Edward Willis-Hall was treated with £1.79million gene therapy medication Zolgensma for spinal muscular atrophy in August.

The condition makes muscles weaker and causes problems with movement and breathing owing to lack of a vital protein.

One-year-old Edward can also roll over and sit on his own thanks to the drug, sold to the NHS at an undisclosed discount.

Thrilled mum Megan, 30, of Chingford, East London, said: “This drug has given him his life back.

“He’s doing incredibly well. He has got a new lease of life.”

She shared an adorable video of the tot walking on her Instagram.

She said: “All I ever wanted was for him to be able to sit and I knew then he would have an amazing life.

“It brought a tear to my eye when I first saw it. I thought ‘this is what it should be like’, it was an incredible moment.”