Mum’s stark warning as toddler given just months to live after ‘stomach bug’
THE PARENTS of a toddler thought his vomiting and lack of appetite were caused by a ‘stomach bug’.
To their horror, the tot was given just months to live after an incurable tumour the size of a tennis ball was found in his brain.
Lucas Garcia-Batalla was diagnosed with a grade 3 anaplastic ependymoma – a fast growing malignant tumour – just ten days after his first birthday,
Lucas had been suffering from flu like symptoms, so his diagnosis came as a “shock” to his parents David Garcia Jurado, 42, and Laura Batalla, 38.
The toddler underwent three major brain surgeries, 13 months of chemotherapy and two months of proton beam therapy.
Unfortunately, the tumour kept coming and David suspects his little boy might have less than a year to live.
David, a senior project manager, from Stonehaven, Aberdeenshire, said: “Just before his first birthday Lucas was sick.
“He didn’t have much appetite but we thought it was a stomach bug.
“He didn’t stop vomiting, he was lethargic, and everything happened so quickly – it was not a slow progression.
“A few days later, a CT scan revealed a massive tumour on the back of his head. It was 4cm by 4cm – it was like a tennis ball.
“That was a very dark moment for me. I still have the picture in my mind of my wife holding Lucas and them telling us he had a brain tumour.”
Lucas, now six, celebrated his first birthday on April 1, 2019.
CRUSHED HOPES
After a CT scan revealed Lucas had a grade 3 anaplastic ependymoma, he was transferred to The Royal Hospital for Children and Young People in Edinburgh, where he had a 10 hour operation to remove the tumour.
The operation was successful.
David said: “His first surgery was just two days after his diagnosis.
“They managed to remove everything, it was a successful surgery.
“Lucas then had chemotherapy for 13 months, after that an MRI was OK – he was clear.”
Three months after he finished his chemotherapy Lucas relapsed in September 2020.
He underwent another surgery and was transferred to the Christie Hospital, Manchester where he had two months of proton beam therapy.
There are no more options for him, how many times can you open his head and have a surgery? In all of his journey, the most important thing is to keep him alive but the side effects are really rough
David Garcia Jurado
David said: “We had hope for a year and then in December 2021 he relapsed again.
“He had palliative surgery in March 2022 to remove the tumour, again, that was successful.
“After that in January 2023, he had experimental Gamma Knife surgery – a type of radiotherapy treatment.
“It’s the fist time something like that has been done to a four-year-old to stop or delay the growth for some time.”
Unfortunately, in June 2023, an MRI scan revealed the tumour is continuing to grow.
‘TIME BOMB’
David said there are no more treatment options left for Lucas and they are aiming to give him the best life possible.
He said: “There are no more options for him, how many times can you open his head and have a surgery?
“In all of his journey, the most important thing is to keep him alive but the side effects are really rough.
“Lucas is blind in the right eye and deaf in the left ear.
“It is a miracle that he has been able to go to school. He has a great sense of humour, it is unbelievable.
“You wouldn’t believe what he has gone through.”
David said that the tumour is like a “time bomb” and Lucas might have just a year left to live.
He said it is important to “enjoy the moment” and give Lucas a “normal life”.
Red flags to watch out for in your child
WHEN your child becomes unwell, it can be scary, especially when they are very young and cannot tell you what they are feeling.
Most illnesses in children aren’t usually serious and your tot will recover quickly with some care at home.
Sometimes, it can be hard to pinpoint if your little one is seriously ill – especially in babies – as there might not be any obvious clues.
Trust your instincts. You know your child better than anyone else.
If you think they need more than self-care at home, you can contact 111, your GP or A&E.
Those services can assess your child and provide advice on the care your child needs.
Here are red flag signs to watch out for which mean you should call 999 or go to A&E:
- Pale, mottled or has abnormally cold hands or feet
- Your child has collapsed or is unresponsive, unconscious or difficult to wake, lethargic or confused
- No obvious pulse or heartbeat
- They’re suffering a severe allergic reaction
- Blue around the lips
- They seem very agitated and restless and you cannot settle them with cuddles, toys, TV or food
- They’re having a seizure or fit
- They remain drowsy (sleepy) or very agitated even when they do not have a fever
- Not breathing
- Sucking in and out between ribs
- Using their neck muscles when breathing
- Extremely fast breathing
- Noisy breathing such as grunting or stridor
- Too breathless to talk or feed
- Has long pauses in their breathing (more than 10 seconds)
- Bleeding from an injury that doesn’t stop after 10 minutes of pressure
David said: “It is very difficult to understand, at some point you learn to live with uncertainty.
“It is like having a ticking time bomb, but we want him to have the most normal life possible – it is all about him.”
Catherine Fraher, director of services and digital health at The Brain Tumour Charity, said: “We’re really grateful to everyone who shares their – often heartbreaking – story to raise awareness of brain tumours.
“We know that every family deals with a brain tumour diagnosis and its aftermath in their own unique way.
“That’s why The Brain Tumour Charity offers support to anyone who needs it. It’s so important for them to know that they are not alone.”
