What a Year! 2022 Summary

Overview

2022 has been a busy year on the awareness raising front, which is a brilliant feat for such a rare disease. With more awareness, there will likely be more patients diagnosed with superficial siderosis.  My neurologist told me that he now has more patients, which is kind of relieving, as back in 2016 I was the only one. We’ve also seen an increase of new patients joining the Facebook group over the year, and the numbers slowly continue to climb. Here’s a summary of the things ...